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Find the help you need > Peer Support and Discussion Groups > Support Groups for Von Hippel-Lindau Disease

Support Groups

Autonomous groups of individuals who share a common problem or concern, either directly or through their partners and families, who meet together on a voluntary basis, either in-person, by telephone or via the Internet, to fulfill a need, overcome a disability or cope with a crisis. Members of mutual support groups share their experiences, strengths and hopes and rely on one another for emotional support, information and resources. Included are professionally-facilitated groups, faith-based and secular 12-step models with or without professional participation, groups that use a set of guidelines prepared by a national organization or headquarters, and groups that have no professional participation and/or no specifically-structured format.

1 Provider offering the requested services to residents of the 52205 ZIP Code. Providers are listed by priority/proximity
Von Hippel-Lindau Alliance
PO Box 844682
Boston, MA 02284
(800) 767-4845 ext. 4 Toll-free
(857) 816-3649 Fax
Suffolk County
1034 miles from you
The Iowa Compass resource database information is up-to-date to the best of our knowledge. However, you should always call the provider to confirm this information and make an appointment. Be sure to confirm payment information with the provider, if payment is required. Iowa Compass does not rate or endorse any agency.